Content area
Abstract
Embracing parental advocacy is pivotal in navigating the challenges associated with autism spectrum disorder (ASD). Such challenges include stress, stigmas, educational challenges, and access to support and services. This study’s purpose was to examine parents’ and adult primary caregivers’ perspectives when advocating for an individual with ASD. It examined encountered challenges, too. The grassroots theory of change, the social-relational model of disability, and an asset-based approach were utilized for the theoretical and conceptual frameworks. An exploratory Q methodological approach was used to examine their perspectives. The study gathered data from a qualitative open-ended questionnaire, then collected quantitative data via Q Methods Software and qualitative data via an open-ended survey. The key findings of this study identified four groups from the Q-sort composites: The Esteem Builders, The Proactive Pathfinders, The Collaboration Crusaders, and The Knowledgeable Advocates. Through the exploratory process, the Three Es of Grayson’s Theory emphasizes intentional decision-making to overcome challenges for individuals with ASD and their caregivers through empowerment, enlightenment, and elevation.
